Tuesday, May 19, 2009

We're moving!

We were going to be moving into our new home on May 30th, but it turns out we don't have to wait that long anymore because they are putting on the new roof today, which means that we can do the necessary repairs and paint the walls tomorrow and Thursday, and the carpets are going in on Friday, which means that we can move in on Saturday! Hip hip hooray!! This is wonderful on so many levels :) There was a good chance that I would have lost my sanity if we had had to stay here any longer...that's all I'll say... ;)
So of course, I really don't have time to be blogging (as you may have gathered from the fact that I haven't been blogging...), but I just wanted to write a quick post to share the news!
I don't want to post all the before pictures before I have some after pictures, but here's a little taste of the stunning decor we will be destroying.

Hard to believe we want to get rid of these lovely wallpapers and paints, hey?! Hahaha!
Well, next time you hear from me I shall be blogging from our new home! Our home!
I'm so excited!

Saturday, May 09, 2009

Leaps and Bounds!

Well, Avery has been making some excellent progress recently!! On Thursday at hippotherapy she took SEVEN steps!! All by herself!! Without her braces on!!! Apparently, she took 2 steps, stopped to balance herself, took 3 more steps, stopped again to balance, and then took two more steps and fell down!! What was her motivation? She wanted to walk "like Daddy"!
This is HUGE!!
We are so proud of her!!
Lisa thinks that the pool is helping her confidence a lot, because she's been able to experience walking around a little bit with only the water to help her stand.
This is a video from today. Gabe set up this little area in the front room and used this tigger toy as motivation - she had to walk over to give him a hug. And yes, she falls over at the end, but just watch how much control she has while she takes those steps!!

PS, I just watched the videos from this morning with Gabe (He got a few videos - very cute, and very exciting!), and he says that he didn't get the best one on video - she took about 8 good steps apparently!!!! And when he was telling me about it he said, "I don't think she'd fall if there were spikes or a minefield or something" Hahaha!! So maybe we'll try that next....!!!!

Also, I just found this which some of you might be interested in! It's a post on Carilion's blog (I didn't know they had one) about their new partnership with Healing Strides of VA, and there's a video of Avery therapist Lisa talking about hippotherapy and why it's so great.

Tuesday, May 05, 2009

Walking in the Pool

Friday, May 01, 2009

Phone call from Dr Brown

At Avery's appointment with Dr Brown a couple of weeks ago, I mentioned to him the fact that she's been getting bruises on the bottom of her back for...I don't know, a while. They're always there - the new ones appear to replace the ones that are just starting to fade. I don't know what they are. Anyway, it just so happened that the day we were there was the first day in a long time that there was only the faint shadow of a bruise, which is typical - as soon as you go to a doctor about something it goes away!
Anyway, this morning he called me out of the blue and said "Laura and I were just talking about Avery, and we want to get a lumbar MRI done, because with Avery's gait getting worse and the bruises, etc, we just want to rule out any spina bifida activity." Weird. And unexpected. Nice that he doesn't just forget about her the minute she leaves his office though, don't you think?
Once again my ignorance is becoming apparent! I've been doing a little research since I spoke to Dr Brown, and contrary to what I have always thought, there are many different kinds and degrees of spina bifida, and even people walking around living their lives with no idea that that they have spina bifida! So I do not feel overwhelmed or discouraged, because regardless of whether Avery has it or not, she is still the same sweet little girl, and her physical challenges and triumphs won't change with a new diagnosis.
Saying that, Dr Brown says that he thinks it's unlikely that she does have it, he just wants to make sure. Now that I've thought about it a little bit, I wouldn't be completely and utterly shocked if there was something going. A little bit yes, but not completely. She doesn't have any bladder problems, but she does suffer with constipation a lot which has been getting worse as she's been getting older. She also has a deep dent just above her bottom, which just sort of makes it look like her butt crack is longer than it actually is, if you can picture that! I've not really thought too much about it before though, because I have it too, but apparently when my mother was pregnant with me they thought I might end up having spina bifida, which is interesting to think about now.
Anyway! That's what's going on! So we need to schedule an MRI of her spine, and we'll see what happens from there!
In addition to that,
  • Brogan's first tooth broke through this morning
  • Avery took 5 independent steps at physical therapy today!!!
Life is good!