Well, I don't have much time, but I thought I should post a quick update.
We are now up at UVa medical center in Charlottesville. They just weren't getting any closer to giving us answers let alone solutions down in Roanoke, so Avery came up to UVA by ambulance on Saturday morning. She was having a pretty good moment when they left, so she was able to enjoy the ambulance ride until she fell asleep, so that was good :)
We are not yet any closer to a diagnosis, and Avery is so sick of being poked and prodded. As of this morning she is on her 4th IV, and it was so sad to see them doing it. I told her they had to do a new one because the old one wasn't working any more, and she kept on saying "No, it's working! I'm finished!!" She was so upset. She's got to the point now where she starts panicking a bit whenever a nurse or doctor comes in to the room, and she will still tell us when she's hurting (which is almost constantly now), but if anyone else asks her how she feels she says she's fine. I think she's afraid that they'll do something else to her if she tells them she's in pain. Poor girl.
Yesterday they inserted an ICP monitor into her head. Hopefully it will bring us closer to some answers.
We (well, one of us plus Brogan) are staying at the Ronald McDonald house right next to the hospital. What a blessing this place is.
My mother flies in tomorrow to help with watching Brogan so that we can both spend more time with Avery.
Well, that's all I can bring myself to write at the moment. It's just all so frustrating, I wish it was all over and we could take Avery home.