Last week I had a meeting with Avery's teacher to discuss her progress. Her goals and progress reports are divided up into the following categories:
- Adaptive/Self Help
- Fine/Visual motor skills
- Gross Motor
Also, obviously, she is still struggling with a lot of the gross motor skills, although she has done a very good job of meeting most of her goals! She still uses her walker when they play outside on the playground, and she apparently can pretty much navigate the whole thing by herself now, including going up and down the steps a lot of the time. Gabe and I have been talking about bringing the walker home again, because although I would ideally like for her to be using her cane as much as possible, when we're out in public she still needs to hold my hand probably about 90% of the time, which makes things difficult sometimes. And it also means that she's not enjoying quite so much independence as she used to when we primarily used her walker, because she can't just go running off by herself. In familiar places like school, home and the hospital (therapy) she can use her cane with no help, but other places she really needs help a lot of the time. But anyway, her teacher says that she hardly ever crawls at school anymore, which is exciting! She says that even in the classroom sometimes she will stand up and use her cane without any prompting, which is great. She's still having a hard time carrying anything around when she's using her cane, and isn't quite keeping pace with her classmates, but she is doing a great job.
Other than that, one of her exciting developments is an increased interest in interacting with her friends! Her teacher was telling me that Avery will now initiate play with her classmates, rather than just responding, and this is something that we have been noticing too! Whenever I pick her up from school these days it takes us a few minutes to get out of the door because she wants to say goodbye to all her little friends :) Also, at the pool last week a little boy who was probably a year or two older than Avery came over and said hello to me, and Avery looked at him and said, "I want to play a game with you!" That would never have happened before! Not only agreeing to play with a child she doesn't know, but being the one to initiate it! And they played "sharks", and at one point he pounced on her just a little too hard and she got a little water in her mouth and nose, but she didn't freak out, and she even still played with him after she had finished coughing! It was very exciting for me to see :) Speaking of the pool, she is getting so confident walking around independently in the water! She will just walk all over the pool now with no help! She just decides where she wants to go, and just goes!
Anyway, that was pretty much it for the school report. Oh, except that we've also been concerned about how easily fatigued she has been for the last several weeks, and they've been noticing that at school too. Harmony (her teacher) thinks she's not as happy at school as she has been, and she thinks that maybe she's struggling a little bit with being way ahead of the rest of the class cognitively and verbally. A lot of the other children are in the class for speech delays and things like that. There are days as well where she says she is just too tired to do anything really. I'm a little nervous about the fatigue, because she was so tired before she was hospitalised for her shunt problems last year....although she hasn't been complaining of headaches or dizziness, so it could just be another growth spurt. It's just been going on for a few weeks now.
Anyway, I must go get my children ready for bed now! Goodnight!