Wednesday, March 30, 2011

534 miles

7:30am on Monday morning Avery, Oliver and I hopped in the van and made our way up to Herndon, VA, for Avery's monthly ABM therapy. 36 hours, 4 therapy sessions and 534 miles later, we got home again yesterday evening. It was exhausting, as ever, but completely worth it. As ever. Avery is making great progress, and it is fascinating to watch. 
I have lost the charger for our camera battery, which is one of the reasons my poor little blog has been neglected recently, so for today I am just posting a picture from a few weeks ago when the sun came out and we were able to enjoy a little bit of time outside in our backyard, for the first time in a long time :)

Thursday, March 10, 2011

Cute book

Gabe bought a couple of books for Avery a little while ago to help her feel good about the pending arrival of her wheelchair. Susan Laughs is a really cute little book, and I loved Avery's reaction to it! It's all about a little girl called Susan, and all the things she does, like laugh, play, get angry, make jokes, etc, and on the last page you see her sitting in a wheelchair. Of course, the purpose of it is to show that children with disabilities are just like other children. Avery loved all the pictures as we were reading it for the first time, and she kept on laughing or asking questions about the various things that Susan was doing in each picture. When we turned to the last page and she saw the picture of Susan sitting in her wheelchair, Avery asked why she was in a wheelchair, so we talked about the various reasons that could make a wheelchair a necessity, including the reason she was getting one. She listened quietly, and then, as I closed the book, she looked at me and quietly said, "I really loved that book, Mom!"
The wheelchair has continued to be a positive experience for her! Yesterday when she got home from school she told me about how her teachers turned off the lights so that she could show her friends how the front caster wheels light up. I spoke to them on Monday about how I hoped that they could help foster Avery's enthusiasm for her new wheels, so I was pleased to hear that they had been showing excitement about it. I wish I could say as much about Kristen, the school PT. She called me yesterday to "touch base" about the wheelchair, which you may remember she has been against from the beginning. The 3 things she had to say about it were,
  1. The front right caster doesn't tough the ground quite as firmly as it should. We had already noticed this, and it is just a matter of adjusting the angle.
  2. It doesn't have a seat belt.
  3. She saw Avery stepping onto the footrests to climb into it.
That is all very well and fine, but when she has made it quite clear that she didn't want Avery to have a wheelchair in the first place, it just felt as though she was being unnecessarily negative. But again, I can deal with that. The thing that bothered me was that when I asked Avery what Miss Kristen thought of her wheelchair, she sighed and said, "She said it didn't have a seat belt so she couldn't buckle me. And she "No! No!" because I climbed up wrong." Could she not have tried to be a little more positive with Avery?
In other news, I am supposed to be registering Avery for regular kindergarten tomorrow, and the school she is supposed to be going to is probably the last school in Roanoke that I would ever consider sending her to. There's just no way. So we are looking into other options.

Saturday, March 05, 2011

Super cool wheelchair for my amazing girl!

Avery is 
That's all there is to it!

The first time she sat in her new wheelchair at the store this morning, I showed her where the handles were and she immediately started pushing herself around! And I don't know if you can tell from the video, but her posture while sitting in it had already improved by the end of the day. She is so great :)

And to those of you who donated money towards Avery's wheelchair in tribute to my wonderful Grandad... I cannot even tell you how much that means to me and my family. When my mother told me that they were going to be asking for this in lieu of flowers, I choked up a little because it was so unexpected and so touching. And the generosity of those who helped is overwhelming to me. 
Thank you. 
So much. 

Friday, March 04, 2011

Big Day!

We have had a very busy couple of weeks which I will need to blog about, but I just got off the phone with Heather at Tender Hearts to confirm our appointment, and I am excited.
Tomorrow is the BIG DAY!
We are going to go pick up Avery's new wheelchair!!