Wednesday, September 21, 2011

3.5 Weeks Post-SPML

This is not a big update. I’m sitting in the dark at a hotel in Sterling right now, being quiet while my children sleep! We are up here for Avery second intensive week of therapy. It is going really well! Here is something she’s been doing recently:

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She would never have been able to hold one leg up like this before! Look at that separation! She is definitely doing some things her Daddy can’t do Smile with tongue out This was during her nightly routine of getting her braces strapped on before going to sleep. I have been pleasantly surprised by how well she has accepted this. She will even remind me to help her put them on if she thinks I’m going to forget! Also notice my sick little boy in the background there. Why is it that he has got sick during both of our therapy weeks so far??! He was all better today, but he was pretty miserable that first night and the next day.

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Doing some standing work during therapy with Catherine today.

Monday, September 19, 2011

Bathing with casts....

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As fun as this is, I don't think anyone is going to miss those casts too much...! 
6 more days :)
(I wrote a post about the first week of therapy, but it's gone missing....)

Friday, September 02, 2011

Recovery, Day 6

Avery and I got home from Texas late last night! We had a wonderful trip, and it is wonderful to be home with my boys, and my Gabe :)!! How can two little boys change so much in 8 days?? I have some more pictures and videos to post from the fun part of our trip, but I just wanted to write a quick update about Avery's progress. She is still feeling a fair amount of pain whenever she tries to use her legs, but is pretty comfortable when she's relaxing. I almost wish that I hadn't allowed her to get up onto her feet those first couple of days, because it hurt her a lot, and I think that has made her fearful now. She was so excited to get up and try out her legs, but now it takes a lot of coaxing and encouragement to get her to try to stand up. A big thing I was looking forward to about coming home was that we would have access to her walker again, which I knew would make it easier for her to get herself upright. So today, after lunch and a dose of pain medication, I let her choose a show to watch and helped her stand up in her walker to watch it. 
She did a really good job!! I think that she really relied on her arms to take a lot of her weight off her feet, but it was a good, positive experience, and I think it helped her realise that it's not going to hurt forever. You can really see the tension and fear of pain in the way she tensed up all the way down into her toes:

 I hope that you noticed that big, beautiful, wide open space between her knees when she was stepping in the video??!! Amazing!!! We are still very excited about the possibilities with this surgery. That includes Avery... Brogan asked her why she couldn't walk like him tonight, and she told him that she will be able to soon. She is excited, and is being (mostly) very brave and pushing herself to work through some of the fear and discomfort. We are excited to get started with therapy next week, and we are all very excited for the pain to go away so that Avery can really start to enjoy the benefits of her surgery!!!